"I can't cry on cue": Exploring distress experiences of persons with sickle cell

• Egile Nagusiak: Janet E. Childerhose (Egilea), Brent Emerson (Egilea), Andrew Schamess (Egilea), Jacqueline Caputo (Egilea), Marcus Williams (Egilea), Maryanna D. Klatt (Egilea)
• Formatua: Liburua
• Argitaratua: Elsevier, 2024-06-01T00:00:00Z.
• Gaiak: article
• Sarrera elektronikoa: Connect to this object online.

Persons with sickle cell disease exhibit high levels of distress, which has been documented with validated measures. However, there has been little qualitative investigation of the sources of distress in the lives of persons with sickle cell or the strategies they use to manage different sources of...