Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

• मुख्य लेखकों: Laurie Eliason (लेखक), Laura Grant (लेखक), Anya Francis (लेखक), Anna Cardellino (लेखक), Ken Culver (लेखक), Sant P. Chawla (लेखक), Rob Arbuckle (लेखक), Shibani Pokras (लेखक)
• स्वरूप: पुस्तक
• प्रकाशित: SpringerOpen, 2022-05-01T00:00:00Z.
• विषय: article
• ऑनलाइन पहुंच: Connect to this object online.

Abstract Background The outlook for patients with metastatic synovial sarcoma (mSS) is poor. Better understanding of patient experience in this setting, beyond clinical measures, may guide improvements in management. Validated patient-reported outcome (PRO) instruments specific to many types of canc...