Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

• Main Authors: Laurie Eliason (Author), Laura Grant (Author), Anya Francis (Author), Anna Cardellino (Author), Ken Culver (Author), Sant P. Chawla (Author), Rob Arbuckle (Author), Shibani Pokras (Author)
• Format: Book
• Published: SpringerOpen, 2022-05-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background The outlook for patients with metastatic synovial sarcoma (mSS) is poor. Better understanding of patient experience in this setting, beyond clinical measures, may guide improvements in management. Validated patient-reported outcome (PRO) instruments specific to many types of canc...