Development and content validation of a sunlight exposure diary in patients with erythropoietic protoporphyria
Abstract Background Erythropoietic protoporphyria is a rare, inherited disorder presenting in early childhood with severe, painful phototoxicity. EPP has significant impacts on health-related quality of life, though there is variable disease severity. Accurately capturing how much time individuals w...
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| Main Authors: | , , , , , |
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| Format: | Book |
| Published: |
SpringerOpen,
2023-11-01T00:00:00Z.
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| Online Access: | Connect to this object online. |
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Internet
Connect to this object online.3rd Floor Main Library
| Call Number: |
A1234.567 |
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| Copy 1 | Available |