Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

Abstract Background Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Common to all, however, are difficulties regarding in...

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Main Authors: Svenja Litzkendorf (Author), Martin Frank (Author), Ana Babac (Author), Daniel Rosenfeldt (Author), Franziska Schauer (Author), Tobias Hartz (Author), J.-Matthias Graf von der Schulenburg (Author)
Format: Book
Published: BMC, 2020-06-01T00:00:00Z.
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3rd Floor Main Library

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