Twelve principles to support caregiver engagement in health care systems and health research

• Main Authors: Kerry Kuluski (Author), Kristina Kokorelias (Author), Allie Peckham (Author), Jodeme Goldhar (Author), John Petrie (Author), Carole Anne Alloway (Author)
• Format: Book
• Published: The Beryl Institute, 2019-04-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Family and friend caregivers (i.e., unpaid carers) play a critical role in meeting the needs of people across various ages and illness circumstances. Caregiver experiences and expertise, which are currently overlooked, should be considered in practice (such as designing and evaluating services) and...