Defining the Minimal Long-Term Follow-Up Data Elements for Newborn Screening

• Váldodahkkit: Yvonne Kellar-Guenther (Dahkki), Lauren Barringer (Dahkki), Katherine Raboin (Dahkki), Ginger Nichols (Dahkki), Kathy Y. F. Chou (Dahkki), Kathy Nguyen (Dahkki), Amy R. Burke (Dahkki), Sandy Fawbush (Dahkki), Joyal B. Meyer (Dahkki), Morna Dorsey (Dahkki), Amy Brower (Dahkki), Kee Chan (Dahkki), Mei Lietsch (Dahkki), Jennifer Taylor (Dahkki), Michele Caggana (Dahkki), Marci K. Sontag (Dahkki)
• Materiálatiipa: Girji
• Almmustuhtton: MDPI AG, 2024-05-01T00:00:00Z.
• Fáttát: article
• Liŋkkat: Connect to this object online.

Newborn screening (NBS) is hailed as a public health success, but little is known about the long-term outcomes following a positive newborn screen. There has been difficulty gathering long-term follow-up (LTFU) data consistently, reliably, and with minimal effort. Six programs developed and tested a...