Defining the Minimal Long-Term Follow-Up Data Elements for Newborn Screening

Defining the Minimal Long-Term Follow-Up Data Elements for Newborn Screening

Newborn screening (NBS) is hailed as a public health success, but little is known about the long-term outcomes following a positive newborn screen. There has been difficulty gathering long-term follow-up (LTFU) data consistently, reliably, and with minimal effort. Six programs developed and tested a...

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Main Authors: Yvonne Kellar-Guenther (Author), Lauren Barringer (Author), Katherine Raboin (Author), Ginger Nichols (Author), Kathy Y. F. Chou (Author), Kathy Nguyen (Author), Amy R. Burke (Author), Sandy Fawbush (Author), Joyal B. Meyer (Author), Morna Dorsey (Author), Amy Brower (Author), Kee Chan (Author), Mei Lietsch (Author), Jennifer Taylor (Author), Michele Caggana (Author), Marci K. Sontag (Author)
Format: Book
Published: MDPI AG, 2024-05-01T00:00:00Z.
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3rd Floor Main Library

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