Documentation of Psychosocial Distress and Its Antecedents in Children with Rare or Life-Limiting Chronic Conditions

• Main Authors: Sarah R. McCarthy (Author), Elizabeth H. Golembiewski (Author), Derek L. Gravholt (Author), Jennifer E. Clark (Author), Jeannie Clark (Author), Caree Fischer (Author), Hannah Mulholland (Author), Kristina Babcock (Author), Victor M. Montori (Author), Amie Jones (Author)
• Format: Book
• Published: MDPI AG, 2022-05-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Children with rare or life-limiting chronic conditions and their families are at high risk of psychosocial distress. However, despite its impact on patient and family health and functioning, psychosocial distress and its antecedents may not routinely be captured in medical records. The purpose of th...