Understanding treatment burden in hemophilia: development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM)

Abstract Background To capture the broad range of treatment burden issues experienced by adolescent and adult people with hemophilia (PWH), the Hemophilia Treatment Experience Measure (Hemo-TEM) was developed. We describe the development of this new hemophilia-specific patient-reported outcome (PRO)...

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Main Authors: Meryl Brod (Author), Donald M. Bushnell (Author), Jesper Skov Neergaard (Author), Laura Tesler Waldman (Author), Anne Kirstine Busk (Author)
Format: Book
Published: SpringerOpen, 2023-02-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
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