The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults

• Main Authors: Taco van Welzenis (Author), Ingunn Westerheim (Author), Tracy Hart (Author), Lena Lande Wekre (Author), Oliver Semler (Author), Frank Rauch (Author), Laetitia Dewavrin (Author), Ruby Dadzie (Author), Samantha Prince (Author), Cathleen Raggio (Author)
• Format: Book
• Published: BMC, 2024-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background The IMPACT Survey explored the humanistic, clinical, and economic burden of osteogenesis imperfecta (OI) on individuals with OI, their families, caregivers, and wider society. Two previous publications report research methodology, initial insights of the survey, and cost of illne...