Community Engagement, Trust, and Genetic Testing for Inherited Diseases Among Adopted Persons

• Main Authors: Kaija L. Zusevics (Author), Kimberly Strong (Author), Michael McCauley (Author), Alison La Pean Kirschner (Author), Jessica Jeruzal (Author), Samantha Wilson (Author), Carmen Knight (Author), Thomas May (Author)
• Format: Book
• Published: The University of Alabama, 2022-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

We identify concerns pertinent to establishing trust necessary to support adoptees' confidence in and uptake of genetic testing that might allow them to benefit from early screening and medical intervention. Using principles of community-based participatory research, our study sought to build a...