The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups

BackgroundPatients struggling with rare diseases may face challenges caused by care providers being unfamiliar with their condition. The life span of people with rare diseases may be the same as that of healthy people, but their quality of life is different. Patients with chronic pain are constantly...

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Bibliographic Details
Main Authors: Sadaf Ashtari (Author), Adam Daniel Taylor (Author)
Format: Book
Published: JMIR Publications, 2022-08-01T00:00:00Z.
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3rd Floor Main Library

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