Impact of a psychodermatological education package on the subjective distress, family burden, and quality of life among the primary caregivers of children affected with epidermolysis bullosa

• Main Authors: P A Manomy (Author), Vamsi K Yenamandra (Author), Garima Dabas (Author), Poonam Joshi (Author), Atul Ambekar (Author), Vishnubhatla Sreenivas (Author), Vinod K Sharma (Author), Manju Vatsa (Author), Surya Ravindran (Author), Gomathy Sethuraman (Author)
• Format: Book
• Published: Wolters Kluwer Medknow Publications, 2021-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: Epidermolysis bullosa (EB) has profound effect on the subjective distress, family burden, and quality of life (QOL) of the primary caregivers (PCG). Knowledgeable PCG can efficiently manage children with these skin diseases and also improve their QOL. Objectives: To assess the subjective...