Needs and Research Priorities for Young People with Spinal Cord Lesion or Spina Bifida and Their Caregivers: A National Survey in Switzerland within the PEPSCI Collaboration

• Main Authors: Irina Benninger (Author), Patricia Lampart (Author), Gabi Mueller (Author), Marika Augutis (Author), Inge Eriks-Hoogland (Author), Sebastian Grunt (Author), Erin Hayes Kelly (Author), Beth Padden (Author), Cordula Scherer (Author), Sandra Shavit (Author), Julian Taylor (Author), Erich Rutz (Author), Anke Scheel-Sailer (Author), PEPSCI-Collaboration (Author)
• Format: Book
• Published: MDPI AG, 2022-02-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

The aim of this study was to describe the needs and research priorities of Swiss children/adolescents and young adults (from here, "young people") with spinal cord injury/disorder (SCI/D) or spina bifida (SB) and their parents in the health and life domains as part of the international Pan...