Lessons learned about publication of results of community surveys when regulatory oversight has not occurred

• Main Authors: Christina Roman (Author), Alexandra C.H. Nowakowski (Author), Julie Lazzara (Author), Enid Aliaj (Author), Kathryn M. Porter (Author), Stephanie A. Kraft (Author), Seema K. Shah (Author), Drucy Borowitz (Author), Benjamin S. Wilfond (Author)
• Format: Book
• Published: Elsevier, 2022-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: We conducted a survey in an online forum without prior IRB approval which yielded information we wanted to share with the medical community. We sought approaches to ethically publish the survey's results. Objective: Address the ethical issues raised by considering publication of com...