The strengths and complexities of European registries concerning paediatric kidney transplantation health care

• Main Authors: Loes Oomen (Author), Liesbeth L. De Wall (Author), Kai Krupka (Author), Burkhard Tönshoff (Author), Tanja Wlodkowski (Author), Loes FM Van Der Zanden (Author), Marjolein Bonthuis (Author), Ilse D. Duus Weinreich (Author), Linda Koster-Kamphuis (Author), Wout FJ Feitz (Author), Charlotte MHHT Bootsma-Robroeks (Author)
• Formato: Livro
• Publicado em: Frontiers Media S.A., 2023-03-01T00:00:00Z.
• Assuntos: article
• Acesso em linha: Connect to this object online.

IntroductionPatient data are increasingly available in (multi)national registries, especially for rare diseases. This study aims to provide an overview of current European registries of paediatric kidney transplantation (PKT) care, their coverage, and their focus. Based on these data, we assess whet...