Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

• Main Authors: Schmit, Cason (Author), Ajayi, Kobi V (Author), Ferdinand, Alva O (Author), Giannouchos, Theodoros (Author), Ilangovan, Gurudev (Author), Nowell, W Benjamin (Author), Kum, Hye-Chung (Author)
• 格式: 图书
• 出版: JMIR Publications, 2020-12-01T00:00:00Z.
• 主题: article
• 在线阅读: Connect to this object online.

BackgroundThere is substantial prior research on the perspectives of patients on the use of health information for research. Numerous communication barriers challenge transparency between researchers and data participants in secondary database research (eg, waiver of informed consent and knowledge g...