Perceptions and beliefs of community gatekeepers about genomic risk information in African cleft research

• Main Authors: Abimbola M. Oladayo (Author), Oluwakemi Odukoya (Author), Veronica Sule (Author), Ikenna Molobe (Author), Tamara Busch (Author), Babatunde Akodu (Author), Wasiu L. Adeyemo (Author), Lord J. J. Gowans (Author), Mekonen Eshete (Author), Azeez Alade (Author), Waheed Awotoye (Author), Adebowale A. Adeyemo (Author), Peter A. Mossey (Author), Anya E. R. Prince (Author), Jeffrey C. Murray (Author), Azeez Butali (Author)
• Format: Book
• Published: BMC, 2024-02-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background A fundamental ethical issue in African genomics research is how socio-cultural factors impact perspectives, acceptance, and utility of genomic information, especially in stigmatizing conditions like orofacial clefts (OFCs). Previous research has shown that gatekeepers (e.g., reli...