Health-related quality of life of children with Williams syndrome and caregivers in China

• Autors principals: Weijun Chen (Autor), Lidan Sun (Autor), Xinyu He (Autor), Ziqiao Li (Autor), Chai Ji (Autor), Fangfang Li (Autor), Jiyang Shen (Autor), Tianxin Pan (Autor), Xuejing Jin (Autor), Yusang Dong (Autor), Lidan Hu (Autor), Chaochun Zou (Autor), Guannan Bai (Autor)
• Format: Llibre
• Publicat: Frontiers Media S.A., 2023-06-01T00:00:00Z.
• Matèries: article
• Accés en línia: Connect to this object online.

IntroductionWilliams syndrome (WS) is a rare genetic disorder that impacts multiple systems and may cause developmental delays. These medical and developmental issues impose a heavy burden on affected children and their families. However, there was no study on children's health-related quality...