Qualitative Insights into Key Angelman Syndrome Motor Related Concepts Reported by Caregivers-A Thematic Analysis of Semi-Structured Interviews

• Main Authors: Miranda Rogers (Author), Stéphane Motola (Author), Yacine Bechichi (Author), Céline Cluzeau (Author), Tanguy Terray (Author), Allyson Berent (Author), Jennifer Panagoulias (Author), Jessica Duis (Author), Damien Eggenspieler (Author), Laurent Servais (Author)
• Format: Book
• Published: MDPI AG, 2023-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Previous patient-centered concept models of Angelman syndrome (AS) are integral in developing our understanding of the symptoms and impact of this condition with a holistic perspective and have highlighted the importance of motor function. We aimed to develop the motor and movement aspects of the co...