The Cystic Fibrosis Impact Questionnaire: qualitative development and cognitive evaluation of a new patient-reported outcome instrument to assess the life impacts of cystic fibrosis

Abstract Background Patients with cystic fibrosis (CF) experience significant disease burden, including progressive pulmonary decline and reduced survival. This multicenter qualitative study was conducted to develop a new patient-reported outcome (PRO) measure to assess the impact of CF on patients&...

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Main Authors: Kelly P. McCarrier (Author), Mariam Hassan (Author), Paul Hodgkins (Author), Ellison Suthoff (Author), Lisa J. McGarry (Author), Mona L. Martin (Author)
Format: Book
Published: SpringerOpen, 2020-05-01T00:00:00Z.
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3rd Floor Main Library

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