Development and validation of a disease-specific quality of life scale for adult patients with Fabry disease in Japan

• Asıl Yazarlar: Yuta Koto (Yazar), Wakana Yamashita (Yazar), Yoko Lee (Yazar), Nozomi Hadano (Yazar), Chikara Kokubu (Yazar), Norio Sakai (Yazar)
• Materyal Türü: Kitap
• Baskı/Yayın Bilgisi: SpringerOpen, 2022-11-01T00:00:00Z.
• Konular: article
• Online Erişim: Connect to this object online.

Plain English summary Adults with Fabry disease experience severe challenges, which adversely impact their quality of life (QOL). As it is a rare disease, non-patients lack awareness of the severity of its symptoms and the resultant social difficulties of the patients. Most instruments that measure...