Development and validation of a disease-specific quality of life scale for adult patients with Fabry disease in Japan

Plain English summary Adults with Fabry disease experience severe challenges, which adversely impact their quality of life (QOL). As it is a rare disease, non-patients lack awareness of the severity of its symptoms and the resultant social difficulties of the patients. Most instruments that measure...

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Main Authors: Yuta Koto (Author), Wakana Yamashita (Author), Yoko Lee (Author), Nozomi Hadano (Author), Chikara Kokubu (Author), Norio Sakai (Author)
Format: Book
Published: SpringerOpen, 2022-11-01T00:00:00Z.
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