Needs Assessment in Care of Adults With Anorectal Malformations and Exstrophy-Epispadias Complex in Germany

• Main Authors: Anne Karoline Ebert (Author), Nadine Zwink (Author), Nicole Schwarzer (Author), Lilian Brunner (Author), Heiko Reutter (Author), Ekkehart Jenetzky (Author), Johannes Huber (Author), Barbara Ludwikowski (Author)
• Format: Book
• Published: Frontiers Media S.A., 2018-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Introduction: Medical needs of adults with anorectal malformations (ARM) and the exstrophy-epispadias complex (EEC) are not fully understood. Therefore, the aim of the study was to evaluate how affected individuals get along with the current national medical care and what their medical or social lon...