Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis

• Main Authors: Elissa R. Weitzman (Author), Lauren E. Wisk (Author), Parissa K. Salimian (Author), Kara M. Magane (Author), Fatma Dedeoglu (Author), Aimee O. Hersh (Author), Yukiko Kimura (Author), Kenneth D. Mandl (Author), Sarah Ringold (Author), Marc Natter (Author)
• Format: Book
• Published: SpringerOpen, 2018-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Children with Juvenile Idiopathic Arthritis (JIA) often have poor health-related quality of life (HRQOL) despite advances in treatment. Patient-centered research may shed light on how patient experiences of treatment and disease contribute to HRQOL, pinpointing directions for imp...