Palliative Care in SMA Type 1: A Prospective Multicenter French Study Based on Parents' Reports
Spinal muscular atrophy type 1 (SMA-1) is a severe neurodegenerative disorder, which in the absence of curative treatment, leads to death before 1 year of age in most cases. Caring for these short-lived and severely impaired infants requires palliative management. New drugs (nusinersen) have recentl...
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Frontiers Media S.A.,
2020-02-01T00:00:00Z.
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