Health and socio-educational needs of the families and children with rare metabolic diseases: Qualitative study in a tertiary hospital

• Main Authors: Eva María Tejada-Ortigosa (Author), Katherine Flores-Rojas (Author), Laura Moreno-Quintana (Author), María Carmen Muñoz-Villanueva (Author), Juan Luis Pérez-Navero (Author), Mercedes Gil-Campos (Author)
• Format: Book
• Published: Elsevier, 2019-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Introduction: Rare diseases are a challenge for public health due to the lack of information on their magnitude. These include inborn errors of metabolism. The objective of this study was to assess the quality of life and social, health, economic, and educational needs of a group of paediatric patie...