Psychosocial Considerations for the Child with Rare Disease: A Review with Recommendations and Calls to Action

• Asıl Yazarlar: Leslee T. Belzer (Yazar), S. Margaret Wright (Yazar), Emily J. Goodwin (Yazar), Mehar N. Singh (Yazar), Brian S. Carter (Yazar)
• Materyal Türü: Kitap
• Baskı/Yayın Bilgisi: MDPI AG, 2022-06-01T00:00:00Z.
• Konular: article
• Online Erişim: Connect to this object online.

Rare diseases (RD) affect children, adolescents, and their families infrequently, but with a significant impact. The diagnostic odyssey undertaken as part of having a child with RD is immense and carries with it practical, emotional, relational, and contextual issues that are not well understood. Ch...