Psychosocial Considerations for the Child with Rare Disease: A Review with Recommendations and Calls to Action
Rare diseases (RD) affect children, adolescents, and their families infrequently, but with a significant impact. The diagnostic odyssey undertaken as part of having a child with RD is immense and carries with it practical, emotional, relational, and contextual issues that are not well understood. Ch...
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| Main Authors: | , , , , |
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| Format: | Book |
| Published: |
MDPI AG,
2022-06-01T00:00:00Z.
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| Online Access: | Connect to this object online. |
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