The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician's decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1

• Main Authors: Mary Brigid Quirke (Author), Lorna Cassidy (Author), Denise Alexander (Author), Cathal Walsh (Author), Katie Hill (Author), Kate Masterson (Author), Nia Flynn (Author), Maria Brenner (Author)
• Format: Book
• Published: Frontiers Media S.A., 2023-10-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundSpinal Muscular Atrophy (SMA) type 1 is a debilitating condition with a poor prognosis, though therapeutic advances are promising. Long-term ventilation is a common management strategy as respiratory function deteriorates. Without consensus on best practice respiratory management, the deci...