Respect, justice and learning are limited when patients are deidentified data subjects

• Egile Nagusiak: Marielle S. Gross (Egilea), Amelia J. Hood (Egilea), Joshua C. Rubin (Egilea), Robert C. Miller Jr (Egilea)
• Formatua: Liburua
• Argitaratua: Wiley, 2022-07-01T00:00:00Z.
• Gaiak: article
• Sarrera elektronikoa: Connect to this object online.

Abstract Introduction Critical for advancing a Learning Health System (LHS) in the U.S., a regulatory safe harbor for deidentified data reduces barriers to learning from care at scale while minimizing privacy risks. We examine deidentified data policy as a mechanism for synthesizing the ethical obli...