Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry's Research Notification Mechanism

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry's Research Notification Mechanism

BackgroundResearchers face challenges in patient recruitment, especially for rare, fatal diseases such as amyotrophic lateral sclerosis (ALS). These challenges include obtaining sufficient statistical power as well as meeting eligibility requirements such as age, sex, and study proximity. Similarly,...

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Main Authors: Paul Mehta (Author), Jaime Raymond (Author), Moon Kwon Han (Author), Theodore Larson (Author), James D Berry (Author), Sabrina Paganoni (Author), Hiroshi Mitsumoto (Author), Richard Stanley Bedlack (Author), D Kevin Horton (Author)
Format: Book
Published: JMIR Publications, 2021-12-01T00:00:00Z.
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