Patient-reported experience of clinical care of osteogenesis imperfecta (OI) during the COVID-19 pandemic

• Main Authors: Debra Smyth (Author), Monica Hytiris (Author), Coreen Kelday (Author), Ciara McDonnell (Author), Christine Burren (Author), Adrian Gardner (Author), Lisa Mills (Author), Susan Parekh (Author), Oliver Semler (Author), Angela Stewart (Author), Ingunn Westerheim (Author), Muhammad Kassim Javaid (Author), Patricia Osborne (Author), S. Faisal Ahmed (Author)
• Format: Book
• Published: Frontiers Media S.A., 2023-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundResearch on the effects of the COVID-19 pandemic on people with rare diseases is limited. Few studies compare healthcare throughout the progression of the ongoing pandemic.AimsTo assess the impact of the pandemic on individuals with osteogenesis imperfecta across two consecutive years, und...