Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

• Main Authors: May El Hachem (Author), Damiano Abeni (Author), Andrea Diociaiuti (Author), Roberta Rotunno (Author), Francesco Gesualdo (Author), Giovanna Zambruno (Author), Christine Bodermer (Author)
• Format: Book
• Published: BMC, 2019-02-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Inherited ichthyoses are rare disorders characterized by generalized skin scaling. Among them, autosomal recessive congenital ichthyoses (ARCI) form a major subgroup presenting lifelong and severely disabling cutaneous and extracutaneous features and symptoms for which no curativ...