Quality of life, socioeconomic and psychological concerns in parents of children with tuberous sclerosis complex, STXBP1 and SYNGAP1 encephalopathies: a mixed method study

BackgroundDevelopmental and Epileptic Encephalopathies (DEEs) occur in childhood and are associated with severe epileptic seizures and neurological impairment. The aim of this study was to combine quantitative and qualitative methodologies to comprehensively describe factors related to quality of li...

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Bibliographic Details
Main Authors: María Salcedo- (Author), Domingo Palacios-Ceña (Author), Ana San- (Author), Ángel Aledo-Serrano (Author), Lidiane Lima Florencio (Author)
Format: Book
Published: Frontiers Media S.A., 2023-11-01T00:00:00Z.
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3rd Floor Main Library

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