Return of genetic and genomic research findings: experience of a pediatric biorepository

• Main Authors: Tanya Papaz (Author), Eriskay Liston (Author), Laura Zahavich (Author), Dimitri J. Stavropoulos (Author), Rebekah K. Jobling (Author), Raymond H. Kim (Author), Miriam Reuter (Author), Anastasia Miron (Author), Erwin Oechslin (Author), Tapas Mondal (Author), Lynn Bergin (Author), John F. Smythe (Author), Luis Altamirano-Diaz (Author), Jane Lougheed (Author), Roderick Yao (Author), Oyediran Akinrinade (Author), Jeroen Breckpot (Author), Seema Mital (Author)
• Format: Book
• Published: BMC, 2019-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Assess process, uptake, validity and resource needs for return of actionable research findings to biobank participants. Methods Participants were prospectively enrolled in a multicenter biorepository of childhood onset heart disease. Clinically actionable research findings were r...