Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

• Main Authors: Annabelle Cumyn (Author), Jean-Frédéric Ménard (Author), Adrien Barton (Author), Roxanne Dault (Author), Frédérique Lévesque (Author), Jean-François Ethier (Author)
• Format: Knjiga
• Izdano: JMIR Publications, 2023-04-01T00:00:00Z.
• Teme: article
• Online dostop: Connect to this object online.

BackgroundSecondary use of health data has reached unequaled potential to improve health systems governance, knowledge, and clinical care. Transparency regarding this secondary use is frequently cited as necessary to address deficits in trust and conditional support and to increase patient awareness...