Towards a Newborn Screening Common Data Model: The Utah Newborn Screening Data Model

• Main Authors: David Jones (Author), Jianyin Shao (Author), Heidi Wallis (Author), Cody Johansen (Author), Kim Hart (Author), Marzia Pasquali (Author), Ramkiran Gouripeddi (Author), Andreas Rohrwasser (Author)
• Format: Book
• Published: MDPI AG, 2021-10-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

As newborn screening programs transition from paper-based data exchange toward automated, electronic methods, significant data exchange challenges must be overcome. This article outlines a data model that maps newborn screening data elements associated with patient demographic information, birthing...