Family Perceptions of Newborn Cytomegalovirus Screening: A Qualitative Study

• Main Authors: Michael J. Cannon (Author), Denise M. Levis (Author), Holly McBride (Author), Danie Watson (Author), Carol Rheaume (Author), Mary Ann Kirkconnell Hall (Author), Tatiana M. Lanzieri (Author), Gail Demmler-Harrison (Author)
• Format: Book
• Published: MDPI AG, 2021-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

We sought to understand long-term retrospective parental perceptions of the utility of newborn screening in a context where many affected children never develop sequelae but where intensive support services and ongoing healthcare were provided. We conducted focus groups and interviews among parents...