Understanding patient and caregiver perspectives using a dyad approach for data collection: A systematic review of the literature

• Main Authors: Jane Loftus (Author), Andrew Yaworsky (Author), Diane Turner-Bowker (Author), Andrew Palladino (Author), Roger Lamoureux (Author), Emily Love (Author), Andreas Pleil (Author)
• Format: Book
• Published: The Beryl Institute, 2022-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Treatments outside of a clinical setting may be managed independently by the pediatric patient, independently by a caregiver, or by the patient and caregiver together. Best practices for pediatric clinical outcome assessment (COA) recommend patient-reported outcome (PRO) and/or observer-reported out...