Public attitudes towards personal health data sharing in long-term epidemiological research: a Citizen Science approach in the KORA study

• Main Authors: Ina-Maria R (Author), Margit Heier (Author), Markus Simon (Author), Monika Kraus (Author), Annette Peters (Author), Birgit Linkohr (Author)
• Format: Book
• Published: BMC, 2024-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Loss to follow-up in long-term epidemiological studies is well-known and often substantial. Consequently, there is a risk of bias to the results. The motivation to take part in an epidemiological study can change over time, but the ways to minimize loss to follow-up are not well...