Usability of NewSTEPs Data for Assessing the Characteristics of Infants with Newborn Screening Disorders

• Main Authors: Amel Omari (Author), Sarah L. Reeves (Author), Lisa A. Prosser (Author), Melissa S. Creary (Author), Ayesha Ahmad (Author), Kao-Ping Chua (Author)
• Format: Book
• Published: MDPI AG, 2022-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Most state newborn screening programs in the U.S. currently contribute case data to the Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs). To assess the usability of these data for research, we examined the completeness of key variables, particularly race and ethnicity. Data i...