Usability of NewSTEPs Data for Assessing the Characteristics of Infants with Newborn Screening Disorders

• Asıl Yazarlar: Amel Omari (Yazar), Sarah L. Reeves (Yazar), Lisa A. Prosser (Yazar), Melissa S. Creary (Yazar), Ayesha Ahmad (Yazar), Kao-Ping Chua (Yazar)
• Materyal Türü: Kitap
• Baskı/Yayın Bilgisi: MDPI AG, 2022-07-01T00:00:00Z.
• Konular: article
• Online Erişim: Connect to this object online.

Most state newborn screening programs in the U.S. currently contribute case data to the Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs). To assess the usability of these data for research, we examined the completeness of key variables, particularly race and ethnicity. Data i...