Economic burden and quality of life of caregivers of patients with sickle cell disease in the United Kingdom and France: a cross-sectional study

• Главные авторы: Martin Besser (Автор), Sian Bissell O'Sullivan (Автор), Siobhan Bourke (Автор), Louise Longworth (Автор), Giovanna Tedesco Barcelos (Автор), Yemi Oluboyede (Автор)
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• Опубликовано: SpringerOpen, 2024-09-01T00:00:00Z.
• Предметы: article
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Abstract Background Sickle cell disease (SCD), a genetic blood disorder that affects red blood cells and oxygen delivery to body tissues, is characterized by haemolytic anaemia, pain episodes, fatigue, and end-organ damage with acute and chronic dimensions. Caring for patients with SCD imposes a hig...