The Minimum Data Set for Rare Diseases: Systematic Review

The Minimum Data Set for Rare Diseases: Systematic Review

BackgroundThe minimum data set (MDS) is a collection of data elements to be grouped using a standard approach to allow the use of data for clinical and research purposes. Health data are typically voluminous, complex, and sometimes too ambiguous to generate indicators that can provide knowledge and...

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Main Authors: Filipe Andrade Bernardi (Author), Bibiana Mello de Oliveira (Author), Diego Bettiol Yamada (Author), Milena Artifon (Author), Amanda Maria Schmidt (Author), Victória Machado Scheibe (Author), Domingos Alves (Author), Têmis Maria Félix (Author)
Format: Book
Published: JMIR Publications, 2023-07-01T00:00:00Z.
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3rd Floor Main Library

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