Care Issues in Patients with Rett Syndrome: A Parental Perspective

• Main Authors: Claudio Cherchi (Author), Elena Chiappini (Author), Maria Beatrice Chiarini Testa (Author), Paolo Banfi (Author), Edvige Veneselli (Author), Renato Cutrera (Author)
• Format: Book
• Published: MDPI AG, 2023-10-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: The purpose of this study is to better understand the way caregivers of patients with Rett syndrome perceive the quality of the health care services they receive and identify its main shortcomings. Methods: A survey was distributed to all caregivers who are part of AIRETT (the Italian As...