The Impact of Raising Children with Barth Syndrome on Parental Health-Related Quality of Life and Family Functioning: Preliminary Reliability and Validity of the PedsQL™ Family Impact Module

• Main Authors: Yoonjeong Lim (Author), Ickpyo Hong (Author), Areum Han (Author)
• Formato: Libro
• Publicado: Hindawi-Wiley, 2023-01-01T00:00:00Z.
• Subjects: article
• Acceso en liña: Connect to this object online.

Objective. This study examined the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL FIM) in families of children with Barth syndrome (BTHS). Method. A total of 72 parents with children or youth between the ages of 5 and 19 participated in this study. Thirty-three pare...