Rare and undiagnosed: Daunting challenges for patients, doctors, and researchers alike
This personal narrative identifies several challenges for patients, doctors, and researchers posed by rare illnesses and difficult to diagnose/long-term undiagnosed patients. In it, I describe several observations on my experiences as a long-time undiagnosed patient and now as one with multiple rare...
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The Beryl Institute,
2022-11-01T00:00:00Z.
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