Perspectives of parents with lived experience of cytomegalovirus infection, on universal newborn screening for congenital cytomegalovirus (cCMV) in Canada: a patient-led qualitative study

• Main Authors: Marcia Bruce (Author), Eliana Castillo (Author), Laija Beaulieu (Author), Barbara Tiedemann (Author), Rabea Chishti (Author), Iqmat Iyiola (Author), Sarah Penny (Author), Caroline Leroux (Author), Ingrid Nielssen (Author), Maria Jose Santana (Author)
• Format: Book
• Published: BMJ Publishing Group, 2024-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objective To understand parental perspectives regarding universal newborn screening (UNS) for congenital cytomegalovirus (cCMV) in Canada.Design A qualitative, patient-led study using the Patient and Community Engagement Research approach consisting of online focus groups and in-depth individual int...