Using social media listening to understand barriers to genomic medicine for those living with Ehlers-Danlos syndromes and hypermobility spectrum disorders

• Main Authors: Erika Kline (Author), Amanda Leigh Garrett (Author), Catherine Brownstein (Author), Sonja Ziniel (Author), Erica Payton (Author), Aleah Goldin (Author), Kathleen Hoffman (Author), Judy Chandler (Author), Shani Weber (Author)
• Format: Book
• Published: Wiley, 2023-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Introduction Technological improvements alone have not led to the integration of genomic medicine across a broad range of diseases and populations. For genomic medicine to be successfully implemented across specialties and conditions, the challenges patients and caregivers experience need t...