Using social media listening to understand barriers to genomic medicine for those living with Ehlers-Danlos syndromes and hypermobility spectrum disorders

• المؤلفون الرئيسيون: Erika Kline (مؤلف), Amanda Leigh Garrett (مؤلف), Catherine Brownstein (مؤلف), Sonja Ziniel (مؤلف), Erica Payton (مؤلف), Aleah Goldin (مؤلف), Kathleen Hoffman (مؤلف), Judy Chandler (مؤلف), Shani Weber (مؤلف)
• التنسيق: كتاب
• منشور في: Wiley, 2023-08-01T00:00:00Z.
• الموضوعات: article
• الوصول للمادة أونلاين: Connect to this object online.

Abstract Introduction Technological improvements alone have not led to the integration of genomic medicine across a broad range of diseases and populations. For genomic medicine to be successfully implemented across specialties and conditions, the challenges patients and caregivers experience need t...