Qualitative Parental Perceptions of a Paediatric Multidisciplinary Team Clinic for Prader-Willi Syndrome

• Main Authors: Jennifer S. Cox (Author), Claire Semple (Author), Rhian Augustus (Author), Melanie Wenn (Author), Shelley Easter (Author), Rebecca Broadbent (Author), Dinesh Giri (Author), Elanor C. Hinton (Author)
• Format: Book
• Published: Galenos Yayincilik, 2021-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objective:This preliminary review was conducted to inform the design of a new service to support families with children with Prader-Willi syndrome (PWS). Families were invited to attend a pilot clinic at a hospital outpatient department, comprising appointments with a multi-disciplinary team (MDT).M...