The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands

• Autori principali: Britt A. E. Dhaenens (Autore), Sarah A. van Dijk (Autore), Walter Taal (Autore), D. Christine Noordhoek (Autore), Anna Coffey (Autore), Stephen P. McKenna (Autore), Rianne Oostenbrink (Autore)
• Natura: Libro
• Pubblicazione: SpringerOpen, 2024-03-01T00:00:00Z.
• Soggetti: article
• Accesso online: Connect to this object online.

Abstract Background Half of the patients with Neurofibromatosis type 1 (NF1) develop one or more tumours called plexiform neurofibromas, which can have a significant impact on Quality of Life (QoL). The PlexiQoL questionnaire is a disease-specific QoL measure for adults with NF1-associated plexiform...