Parents' dilemma: A therapeutic decision for children with spinal muscular atrophy (SMA) type 1

Parents' dilemma: A therapeutic decision for children with spinal muscular atrophy (SMA) type 1

BackgroundSMA type 1 is a severe neurodegenerative disorder that, in the absence of curative treatment, leads to death before 1 year of age without ventilatory support. Three innovative therapies are available to increase life expectancy.Purpose(i) To increase knowledge about parents' experienc...

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Main Authors: Sophie Boursange (Author), Marco Araneda (Author), Caroline Stalens (Author), Isabelle Desguerre (Author), Christine Barnerias (Author), Marie-Christine Nougues (Author), Arnaud Isapof (Author), Susana Quijano-Roy (Author), Nadia Blu Genestine (Author), Laetitia Ouillade (Author), Maripaz Martinez Jalilie (Author), Claudia Castiglioni (Author), Odile Boespflug-Tanguy (Author), Marcela Gargiulo (Author), The SMAPAR Study Group (Author)
Format: Book
Published: Frontiers Media S.A., 2022-12-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
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